RT Journal Article
SR Electronic
T1 The European Multicentre Bronchiectasis Audit and Research Collaboration (EMBARC): experiences from a successful ERS Clinical Research Collaboration
JF Breathe
JO Breathe
FD European Respiratory Society
SP 180
OP 192
DO 10.1183/20734735.005117
VO 13
IS 3
A1 James D. Chalmers
A1 Megan Crichton
A1 Pieter C. Goeminne
A1 Michael R. Loebinger
A1 Charles Haworth
A1 Marta Almagro
A1 Montse Vendrell
A1 Anthony De Soyza
A1 Raja  Dhar
A1 Lucy Morgan
A1 Francesco Blasi
A1 Stefano Aliberti
A1 Jeanette Boyd
A1 Eva Polverino
A1 ,
YR 2017
UL http://breathe.ersjournals.com/content/13/3/180.abstract
AB In contrast to airway diseases like chronic obstructive pulmonary disease or asthma, and rare diseases such as cystic fibrosis, there has been little research and few clinical trials in bronchiectasis. Guidelines are primarily based on expert opinion and treatment is challenging because of the heterogeneous nature of the disease.In an effort to address decades of underinvestment in bronchiectasis research, education and clinical care, the European Multicentre Bronchiectasis Audit and Research Collaboration (EMBARC) was established in 2012 as a collaborative pan-European network to bring together bronchiectasis researchers. The European Respiratory Society officially funded EMBARC in 2013 as a Clinical Research Collaboration, providing support and infrastructure to allow the project to grow.EMBARC has now established an international bronchiectasis registry that is active in more than 30 countries both within and outside Europe. Beyond the registry, the network participates in designing and facilitating clinical trials, has set international research priorities, promotes education and has participated in producing the first international bronchiectasis guidelines. This manuscript article the development, structure and achievements of EMBARC from 2012 to 2017.Educational aimsTo understand the role of Clinical Research Collaborations as the major way in which the European Respiratory Society can stimulate clinical research in different disease areasTo understand some of the key features of successful disease registriesTo review key epidemiological, clinical and translational studies of bronchiectasis contributed by the European Multicentre Bronchiectasis Audit and Research Collaboration (EMBARC) project in the past 5 yearsTo understand the key research priorities identified by EMBARC for the next 5 yearsLearn about @EMBARCnetwork, a successful @ERStalk Clinical Research Collaboration with @EuropeanLung http://ow.ly/IOl230drGf1