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European Lung Foundation: from local to global

Pippa Powell, Sîan Williams, Dan Smyth
Breathe 2016 12: 236-242; DOI: 10.1183/20734735.013016
Pippa Powell
1European Lung Foundation, Sheffield, UK
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Sîan Williams
2International Primary Care Group, London, UK
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Dan Smyth
1European Lung Foundation, Sheffield, UK
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  • For correspondence: dan.smyth@europeanlung.org
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    Figure 1

    ELF carried out a survey of patient organisations that attended the first meeting of the ELF International Patient Advisory Committee and a number of issues of importance were highlighted.

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  • Table 1

    Organisations who attended the first ELF International Patient Advisory Committee meeting and the country where they are based

    CountryOrganisation
    USAAllergy and Asthma Network
    GlobalAlpha 1 Global
    SpainAsociacion Nacional de Hipertension Pulmonar
    IrelandAsthma Society of Ireland
    UKAsthma UK
    USACOPD Foundation
    GlobalCOPD Global
    EuropeEFA
    ItalyFederASMA e ALLERGIE onlus – Federazione italiana pazienti
    FranceFFAIR
    USAFoundation for Sarcoidosis Research
    SpainFundacion Lovexair
    GlobalGlobal Allergy and Asthma Patient Platform
    JapanJapan Federation of Patient Organisations for Respiratory Diseases
    UKJune Hancock Mesothelioma Research Fund
    USANTM Info and Research
    AustriaOsterreichische Lungenunion
    EuropePHA Europe
    USAPulmonary Fibrosis Foundation
    BrazilSocietal Latin de Hypertension Pulmonary
    BrazilThe Brazilian Lymphangioleiomyomatosis Association (ALAMDRA)
  • Table 2

    Key objectives of the FRESH AIR campaign

    To identify the specific factors that influence the implementation of evidence-based interventions in the prevention and treatment of non-communicable lung diseases in community settings
    To explore which awareness-raising approaches are most effective in motivating behaviour change in tobacco consumption and personal exposure to air pollution
    To provide access to smoking cessation support by adapting successful evidence-based Very Brief Advice (VBA)
    To test the feasibility and acceptability of methods for diagnosing COPD using innovative spirometry
    To test the feasibility and acceptability of pulmonary rehabilitation (PR) as a low cost treatment for obstructive lung disease
    To test how to best reduce children’s respiratory symptoms and the risk of lung damage by exploring the feasibility, acceptability and optimal organisation of interventions
    To generate new knowledge, innovation and scalable models that ensure equitable access and to support their implementation through proactive engagement and dissemination
    • See www.theipcrg.org/freshair/work-packages/wp-5-improving-diagnosis-and-treatment for more about the interventions.

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    • P. Powell
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Vol 12 Issue 3 Table of Contents
Breathe: 12 (3)
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European Lung Foundation: from local to global
Pippa Powell, Sîan Williams, Dan Smyth
Breathe Sep 2016, 12 (3) 236-242; DOI: 10.1183/20734735.013016

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European Lung Foundation: from local to global
Pippa Powell, Sîan Williams, Dan Smyth
Breathe Sep 2016, 12 (3) 236-242; DOI: 10.1183/20734735.013016
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Jump To

  • Article
    • Abstract
    • Abstract
    • Introduction
    • Working with patient groups: ELF patient organisation network
    • Preparing individual patients: European Patient Ambassador Programme
    • Raising awareness: Healthy Lungs for Life
    • Collaborating on European Union projects: FRESH AIR global action for healthy lungs
    • Conclusion
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    • References
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