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The European Multicentre Bronchiectasis Audit and Research Collaboration (EMBARC): experiences from a successful ERS Clinical Research Collaboration

James D. Chalmers, Megan Crichton, Pieter C. Goeminne, Michael R. Loebinger, Charles Haworth, Marta Almagro, Montse Vendrell, Anthony De Soyza, Raja  Dhar, Lucy Morgan, Francesco Blasi, Stefano Aliberti, Jeanette Boyd, Eva Polverino on behalf of EMBARC, the European Lung Foundation (ELF) and the EMBARC/ELF patient advisory group
Breathe 2017 13: 180-192; DOI: 10.1183/20734735.005117
James D. Chalmers
1Scottish Centre for Respiratory Research, University of Dundee, Ninewells Hospital and Medical School, Dundee, UK
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  • For correspondence: jchalmers@dundee.ac.uk
Megan Crichton
1Scottish Centre for Respiratory Research, University of Dundee, Ninewells Hospital and Medical School, Dundee, UK
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Pieter C. Goeminne
2AZ Nikolaas, Sint-Niklaas, Belgium
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Michael R. Loebinger
3Royal Brompton Hospital, London, UK
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Charles Haworth
4Papworth Hospital, Cambridge, UK
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Marta Almagro
5EMBARC/ELF Patient Advisory Group
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Montse Vendrell
6Bronchiectasis Research Group, Dr Trueta University Hospital, Girona, Spain
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Anthony De Soyza
7Freeman Hospital, Newcastle, UK
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Raja  Dhar
8Dept of Respiratory Medicine, Fortis Hospital, Kolkata, India
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Lucy Morgan
9Dept of Respiratory Medicine, Concord Hospital, Concord Clinical School, University of Sydney, Sydney, Australia
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Francesco Blasi
10Dept of Pathophysiology and Transplantation, University of Milan, Cardio-Thoracic Unit and Cystic Fibrosis Adult Center, Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico, Milan, Italy
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Stefano Aliberti
10Dept of Pathophysiology and Transplantation, University of Milan, Cardio-Thoracic Unit and Cystic Fibrosis Adult Center, Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico, Milan, Italy
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Jeanette Boyd
11European Lung Foundation, Sheffield, UK
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Eva Polverino
12Servei de Pneumologia, Hospital Universitari Vall d’Hebron, Institut de Recerca Vall d’Hebron, Barcelona, Spain
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Article Information

vol. 13 no. 3 180-192
DOI 
https://doi.org/10.1183/20734735.005117

Published By 
European Respiratory Society
Print ISSN 
1810-6838
Online ISSN 
2073-4735
History 
  • Published online August 31, 2017.

Copyright & Usage 
Copyright ©ERS 2017 Breathe articles are open access and distributed under the terms of the Creative Commons Attribution Non-Commercial Licence 4.0.

Author Information

  1. James D. Chalmers1⇑,
  2. Megan Crichton1,
  3. Pieter C. Goeminne2,
  4. Michael R. Loebinger3,
  5. Charles Haworth4,
  6. Marta Almagro5,
  7. Montse Vendrell6,
  8. Anthony De Soyza7,
  9. Raja  Dhar8,
  10. Lucy Morgan9,
  11. Francesco Blasi10,
  12. Stefano Aliberti10,
  13. Jeanette Boyd11 and
  14. Eva Polverino12
  15. on behalf of EMBARC, the European Lung Foundation (ELF) and the EMBARC/ELF patient advisory group
  1. 1Scottish Centre for Respiratory Research, University of Dundee, Ninewells Hospital and Medical School, Dundee, UK
  2. 2AZ Nikolaas, Sint-Niklaas, Belgium
  3. 3Royal Brompton Hospital, London, UK
  4. 4Papworth Hospital, Cambridge, UK
  5. 5EMBARC/ELF Patient Advisory Group
  6. 6Bronchiectasis Research Group, Dr Trueta University Hospital, Girona, Spain
  7. 7Freeman Hospital, Newcastle, UK
  8. 8Dept of Respiratory Medicine, Fortis Hospital, Kolkata, India
  9. 9Dept of Respiratory Medicine, Concord Hospital, Concord Clinical School, University of Sydney, Sydney, Australia
  10. 10Dept of Pathophysiology and Transplantation, University of Milan, Cardio-Thoracic Unit and Cystic Fibrosis Adult Center, Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico, Milan, Italy
  11. 11European Lung Foundation, Sheffield, UK
  12. 12Servei de Pneumologia, Hospital Universitari Vall d’Hebron, Institut de Recerca Vall d’Hebron, Barcelona, Spain
  1. E-mail: jchalmers{at}dundee.ac.uk
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Vol 13 Issue 3 Table of Contents
Breathe: 13 (3)
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The European Multicentre Bronchiectasis Audit and Research Collaboration (EMBARC): experiences from a successful ERS Clinical Research Collaboration
James D. Chalmers, Megan Crichton, Pieter C. Goeminne, Michael R. Loebinger, Charles Haworth, Marta Almagro, Montse Vendrell, Anthony De Soyza, Raja  Dhar, Lucy Morgan, Francesco Blasi, Stefano Aliberti, Jeanette Boyd, Eva Polverino
Breathe Sep 2017, 13 (3) 180-192; DOI: 10.1183/20734735.005117

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The European Multicentre Bronchiectasis Audit and Research Collaboration (EMBARC): experiences from a successful ERS Clinical Research Collaboration
James D. Chalmers, Megan Crichton, Pieter C. Goeminne, Michael R. Loebinger, Charles Haworth, Marta Almagro, Montse Vendrell, Anthony De Soyza, Raja  Dhar, Lucy Morgan, Francesco Blasi, Stefano Aliberti, Jeanette Boyd, Eva Polverino
Breathe Sep 2017, 13 (3) 180-192; DOI: 10.1183/20734735.005117
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  • Article
    • Abstract
    • Abstract
    • What is EMBARC?
    • Setting up an international registry
    • The EMBARC registry
    • Data access rules and governance
    • Patient involvement
    • Achievements of EMBARC
    • The future: EMBARC 2
    • Conclusion
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