Extract
Rare diseases affect fewer than one person in 2000 in Europe. There are >6000 that have been identified, with the majority (80%) being genetic in origin [1]. Due to the small number of people living with these conditions, they are often neglected; diagnosis is difficult and treatment options limited. European reference networks (ERNs) are a new European Union (EU) initiative that aims to ensure that people living with rare conditions can benefit from the best treatment and advice wherever they live in the EU (https://ern-lung.eu/).
Abstract
It is vital that education in the field of rare lung rare disease is made a priority for healthcare givers as well as for patients http://ow.ly/ysPs30o9v6b
Footnotes
Conflict of interest: P. Powell is an employee of the European Lung Foundation.
Conflict of interest: M. Kreuter reports grants and personal fees from Boehringer Ingelheim and Roche outside the submitted work.
Conflict of interest: M. Wijsenbeek-Lourens has nothing to disclose.
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