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Living well with a chronic respiratory disease

Claudia C. Dobler
Breathe 2019 15: 93-94; DOI: 10.1183/20734735.0196-2019
Claudia C. Dobler
1Centre for Research in Evidence-Based Practice, Bond University, Robina, Australia
2Dept of Respiratory Medicine, Liverpool Hospital, Sydney, Australia
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Abstract

The June issue of Breathe focuses on living well with a chronic respiratory disease http://bit.ly/2Vo3iBV

Many patients we see as respiratory clinicians have a chronic respiratory condition and will therefore require long-term treatment and healthcare support with the main goal of care focusing on reducing symptoms and improving quality of life.

The burden of disease and treatment of chronic respiratory conditions disrupts patients' structures of everyday life and imposes limitations on activities [1]. Patients can achieve well-being in these circumstances by accepting their limitations and adjusting to them, replacing former activities with new meaningful activities they can enjoy and by taking advantage of good days and emotionally adapting to bad
days [2]. Self-capacity, trustful care with continuous care relationships, and access to medications have also been identified as essential to well-being [2].

Non-pharmacological interventions are often underutilised, but they play a central role in achieving well-being and living life to the fullest despite the restrictions of a chronic condition. In this issue of Breathe, the impact of listening to music, making music and dancing on physical, emotional and social well-being in patients with chronic lung disease is reviewed [3]. Further, the role of cognitive behavioural therapy in living well with chronic obstructive pulmonary disease (COPD) is explored [4]. Anxiety and depression are common in patients with COPD and cognitive and behavioural techniques can equip patients to address these challenges. We also hear from a patient what it means to live with allergic bronchopulmonary aspergillosis [5].

Patients who have survived an admission to the intensive care unit subsequently frequently suffer from cognitive, psychological and physical impairments referred to as post-intensive care syndrome. Colbenson et al. [6] outline interventions to prevent and treat post-intensive care syndrome in their editorial.

A highlight of this issue of Breathe is the introduction of the harmonised respiratory physiotherapy curriculum [7]. This comprehensive curriculum provides guidance to accrediting bodies, professional societies, educators and individuals on competencies that must be mastered by a respiratory physiotherapist working with adults and/or children. The curriculum contains recommendations for minimum clinical exposure and lists learning outcomes, forms of learning and resources, and methods of assessing knowledge and skills. This work builds on the core syllabus for postgraduate training in respiratory physiotherapy, part of the Harmonised Education and Training in Respiratory Medicine for European specialists (HERMES) initiative [8].

It is a pleasure to see the active engagement with the contents of Breathe on social media, especially Twitter. It is a unique feature of Breathe articles that they contain the Twitter handle (account name) of authors, which facilitates dissemination and discussion of the published articles.

As we are approaching summer in the Northern hemisphere, I wish you all a refreshing summer break!

Footnotes

  • Conflict of interest: C.C. Dobler has nothing to disclose.

  • Copyright ©ERS 2019
http://creativecommons.org/licenses/by-nc/4.0/

Breathe articles are open access and distributed under the terms of the Creative Commons Attribution Non-Commercial Licence 4.0.

References

  1. ↵
    1. Bury M
    . Chronic illness as biographical disruption. Sociol Health Illn 1982; 4: 167–182.
    OpenUrlCrossRefPubMed
  2. ↵
    1. Stridsman C,
    2. Zingmark K,
    3. Lindberg A, et al.
    Creating a balance between breathing and viability: experiences of well-being when living with chronic obstructive pulmonary disease. Prim Health Care Res Dev 2015; 16: 42–52.
    OpenUrl
  3. ↵
    1. Philip K,
    2. Lewis A,
    3. Hopkinson NS
    . Music and dance in chronic lung disease. Breathe 2019; 15: 116–120.
    OpenUrlAbstract/FREE Full Text
  4. ↵
    1. Heslop-Marshall K,
    2. Burns G
    . The role of cognitive behavioural therapy in living well with COPD. Breathe 2019; 15: 95–97.
    OpenUrlAbstract/FREE Full Text
  5. ↵
    1. Chapman M
    . Living with allergic bronchopulmonary aspergillosis. Breathe 2019; 15: 108–109.
    OpenUrlAbstract/FREE Full Text
  6. ↵
    1. Colbenson GA,
    2. Johnson A,
    3. Wilson ME
    . Post-intensive care syndrome: impact, prevention, and management. Breathe 2019; 15: 98–101.
    OpenUrlAbstract/FREE Full Text
  7. ↵
    1. Troosters T,
    2. Tabin N,
    3. Langer D, et al.
    Introduction of the harmonised respiratory physiotherapy curriculum. Breathe 2019; 15: 110–115.
    OpenUrlAbstract/FREE Full Text
  8. ↵
    1. Troosters T,
    2. Pitta F,
    3. Oberwaldner B, et al.
    Development of a syllabus for postgraduate respiratory physiotherapy education: the Respiratory Physiotherapy HERMES project. Eur Respir J 2015; 45: 1221–1223.
    OpenUrlAbstract/FREE Full Text
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Vol 15 Issue 2 Table of Contents
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Living well with a chronic respiratory disease
Claudia C. Dobler
Breathe Jun 2019, 15 (2) 93-94; DOI: 10.1183/20734735.0196-2019

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Living well with a chronic respiratory disease
Claudia C. Dobler
Breathe Jun 2019, 15 (2) 93-94; DOI: 10.1183/20734735.0196-2019
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