Abstract
Summary Evaluation of healthcare is evolving, with the patient perspective increasingly sought to provide a more patient centred service. Self-report questionnaires are being used to gather information about patients' health-related quality of life; outcomes with, and experience of a treatment, and perceptions of the care delivered by the healthcare team. Patient satisfaction measures may be familiar to clinicians and researchers, as they are used routinely in many clinical settings. Patient satisfaction measures have a ceiling effect, masking the negative healthcare experience. Patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) are measures that that provide a patient-centric view of healthcare. In this article, we aim to untangle for the reviewer, the distinctions between patient satisfaction, PROMs and PREMs measures with a focus on chronic obstructive pulmonary disease (COPD) and introduce work in progress around the development of a new PREM for COPD.
Footnotes
Statement of Interest
M. Hodson has received previous funding to attend the ERS Annual Congress from pharmaceutical companies (these companies were not involved in the present work), and has received honoraria for education talks or in advisory capacity as a nurse consultant. C.M. Roberts has received payment for lectures including service on speakers’ bureaus from GlaxoSmithKline, Almirall and Boehringer Ingelheim.
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