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Towards an understanding of PREMS and PROMS in COPD

Matthew Hodson, Sharon Andrew, C. Michael Roberts
Breathe 2013 9: 358-364; DOI: 10.1183/20734735.006813
Matthew Hodson
1Acute COPD Early Response Service (ACERS), Intergrated Medicine & Rehabilitation Services Division, Homerton University Hospital NHS Foundation Trust, London
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  • For correspondence: matthew.hodson@homerton.nhs.uk
Sharon Andrew
2Faculty of Health, Social Care & Education, Rivermead Campus, Anglia Ruskin University, Chelmsford
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C. Michael Roberts
3Institute of Health Sciences Education, Barts and The London School of Medicine and Dentistry, Queen Mary University of London, London, UK
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Abstract

Summary Evaluation of healthcare is evolving, with the patient perspective increasingly sought to provide a more patient centred service. Self-report questionnaires are being used to gather information about patients' health-related quality of life; outcomes with, and experience of a treatment, and perceptions of the care delivered by the healthcare team. Patient satisfaction measures may be familiar to clinicians and researchers, as they are used routinely in many clinical settings. Patient satisfaction measures have a ceiling effect, masking the negative healthcare experience. Patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) are measures that that provide a patient-centric view of healthcare. In this article, we aim to untangle for the reviewer, the distinctions between patient satisfaction, PROMs and PREMs measures with a focus on chronic obstructive pulmonary disease (COPD) and introduce work in progress around the development of a new PREM for COPD.

Footnotes

  • Statement of Interest

    M. Hodson has received previous funding to attend the ERS Annual Congress from pharmaceutical companies (these companies were not involved in the present work), and has received honoraria for education talks or in advisory capacity as a nurse consultant. C.M. Roberts has received payment for lectures including service on speakers’ bureaus from GlaxoSmithKline, Almirall and Boehringer Ingelheim.

  • ©ERS 2013
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Towards an understanding of PREMS and PROMS in COPD
Matthew Hodson, Sharon Andrew, C. Michael Roberts
Breathe Sep 2013, 9 (5) 358-364; DOI: 10.1183/20734735.006813

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Towards an understanding of PREMS and PROMS in COPD
Matthew Hodson, Sharon Andrew, C. Michael Roberts
Breathe Sep 2013, 9 (5) 358-364; DOI: 10.1183/20734735.006813
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  • Article
    • Abstract
    • Introduction
    • Untangling patient satisfaction, PROMs and PREMs
    • Current work: development of a PREM–COPD
    • Future work on developing a PREM for COPD
    • Conclusion
    • Footnotes
    • References
  • Figures & Data
  • Info & Metrics
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  • Respiratory clinical practice
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