TY - JOUR T1 - Where are the gaps in education in the field of rare lung disease? Perspectives from the ERN-LUNG educational programme survey JF - Breathe JO - Breathe SP - 102 LP - 103 DO - 10.1183/20734735.0120-2019 VL - 15 IS - 2 AU - Pippa Powell AU - Michael Kreuter AU - Marlies Wijsenbeek-Lourens Y1 - 2019/06/01 UR - http://breathe.ersjournals.com/content/15/2/102.abstract N2 - Rare diseases affect fewer than one person in 2000 in Europe. There are >6000 that have been identified, with the majority (80%) being genetic in origin [1]. Due to the small number of people living with these conditions, they are often neglected; diagnosis is difficult and treatment options limited. European reference networks (ERNs) are a new European Union (EU) initiative that aims to ensure that people living with rare conditions can benefit from the best treatment and advice wherever they live in the EU (https://ern-lung.eu/).It is vital that education in the field of rare lung rare disease is made a priority for healthcare givers as well as for patients http://ow.ly/ysPs30o9v6b ER -