TY - JOUR T1 - Quality standards for managing children and adolescents with bronchiectasis: an international consensus JF - Breathe JO - Breathe DO - 10.1183/20734735.0144-2022 VL - 18 IS - 3 SP - 220144 AU - Anne B. Chang AU - Jeanette Boyd AU - Andrew Bush AU - Adam T. Hill AU - Zena Powell AU - Angela Zacharasiewicz AU - Efthymia Alexopoulou AU - James D. Chalmers AU - Andrew J. Collaro AU - Carolina Constant AU - Konstantinos Douros AU - Rebecca Fortescue AU - Matthias Griese AU - Jonathan Grigg AU - Andreas Hector AU - Bulent Karadag AU - Oleksandr Mazulov AU - Fabio Midulla AU - Alexander Moeller AU - Marijke Proesmans AU - Christine Wilson AU - Stephanie T. Yerkovich AU - Ahmad Kantar AU - Keith Grimwood Y1 - 2022/09/01 UR - http://breathe.ersjournals.com/content/18/3/220144.abstract N2 - The global burden of bronchiectasis in children and adolescents is being recognised increasingly. However, marked inequity exists between, and within, settings and countries for resources and standards of care afforded to children and adolescents with bronchiectasis compared with those with other chronic lung diseases. The European Respiratory Society (ERS) clinical practice guideline for the management of bronchiectasis in children and adolescents was published recently. Here we present an international consensus of quality standards of care for children and adolescents with bronchiectasis based upon this guideline. The panel used a standardised approach that included a Delphi process with 201 respondents from the parents and patients’ survey, and 299 physicians (across 54 countries) who care for children and adolescents with bronchiectasis.The seven quality standards of care statements developed by the panel address the current absence of quality standards for clinical care related to paediatric bronchiectasis. These internationally derived, clinician-, parent- and patient-informed, consensus-based quality standards statements can be used by parents and patients to access and advocate for quality care for their children and themselves, respectively. They can also be used by healthcare professionals to advocate for their patients, and by health services as a monitoring tool, to help optimise health outcomes.Child-BEAR-Net has developed internationally derived, clinician-, parent- and patient-informed, consensus-based quality standards of care statements that patients and parents can use to access and advocate for quality care https://bit.ly/3w0tweP ER -